National Organizations Responding to AIDS (NORA)

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February 2004

On Monday, February 9, the National Organizations Responding to AIDS (NORA) coalition, for which AIDS Action serves as the convener, held its monthly meeting. The focus for this month’s meeting was “Community Perspectives on the 2005 Reauthorization of the CARE Act.” Pat Bass, chair of the CAEAR Coalition, and Dr. Marsha Martin, executive director of AIDS Action, were the featured speakers.

Ms. Bass opened the presentation by providing the coalition with an overview of the current political landscape and how it relates to the CARE Act. Given that there is a Republican White House and a Republican-led Congress, the politics and processes of reauthorization will be quite different from what they were in 2000. Therefore, the community will need to commit itself to establishing new partnerships and making reauthorization a bipartisan effort, as it did in 2000 when the White House was headed by a Democrat and the Congress by Republicans.

In the spirit of such co-operation, Ms. Bass shared, CAEAR is partnering with AIDS Action on a joint reauthorization effort. The two organizations will be working collaboratively to ensure that the CARE Act is reauthorized, and that the reauthorized CARE Act is, as much as possible, a reflection of the real needs of people living with HIV and the public and community organizations that serve them.

Ms. Bass continued by laying out what CAEAR believes will be some of the key issues for this reauthorization. They include distribution of funding; local control and the role of the planning councils; quality management; access to and maintenance of care; and funding for women, infants, children, and youth. She identified some of the key challenges for 2005 as widening gaps in the health care system; confusion about the CARE Act’s role in the public health system; the heightened profile of the global epidemic; and financing and funding formulas.

Dr. Martin’s portion of the presentation echoed many of the same themes as Ms. Bass. She too stressed the importance of community collaboration and cooperation, adding that AIDS Action and CAEAR are hoping to add the Human Rights Campaign (HRC) to the collaboration on some of their reauthorization efforts. Dr. Martin then focused her remarks on the policies of HRSA – the Health Resources and Services Administration – and where HRSA is in terms of their work on reauthorization. She explained that, because the CARE Act, which is housed in the HIV/AIDS Bureau, represents $2 billion of HRSA’s $6 billion budget, the agency is eager to keep the program running. In terms of changes for 2005, HRSA seems to be focused on the implementation of the amendments added to the CARE Act in 2000 (many of whose goals have not yet been met) and the integration of the findings of the two Institute of Medicine (IOM) studies that were commissioned as a result of the 2000 reauthorization. The first of these studies, which was released in late 2003, focused on the implications of HIV surveillance for formula allocations and local planning. The second, which is slated to be released in the next two months, focuses on the public financing and delivery of HIV care.

Dr. Martin also mentioned that one particular area of concern is the implementation of the CDC’s new HIV prevention initiative, Advancing HIV Prevention (AHP), and its implications for care and treatment. If AHP were to be effectively implemented, there could be a dramatic rise in the number of people seeking services through the CARE Act, given that one of its primary goals is encouraging individuals to know their HIV status (so that if they are HIV positive, they can seek appropriate services). Yet there is little indication that the Administration is committed to increasing funding to enable HRSA to meet the needs of those whom they already serve, let alone this new population. An increase in the number of people seeking care would have implications across the currently under-funded CARE Act, creating a greater need for its services, including primary medical services, such as the AIDS Drug Assistance Program (ADAP); case management services; housing support; mental health and substance abuse services; and emergency financial services. It is unclear at this time how AHP may effect reauthorization, but it is certainly something that will need to be monitored.


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