| 4. Improved Surveillance Systems through Reporting
and Notification
HIV positive people who are in care are living
longer without receiving a clinical AIDS diagnosis; therefore,
an epidemiological surveillance based on AIDS cases alone no longer
provides an accurate reflection of the epidemic.
In the amendments of the Ryan White CARE Act
Reauthorization of 2000, Congress directed the U.S. Department
of Health and Human Services to examine whether HIV reporting
and surveillance, as opposed to AIDS diagnoses reporting alone,
could be used to restructure the CARE Act’s funding formulas by
2007. In 2004, former Secretary Tommy Thompson said that variations
in state HIV surveillance systems at that time prevented the utilization
of state reported HIV data to determine funding allocations. The
2007 Congressional goal was however within reach, he added.
As of January 2004, all states have implemented
HIV surveillance systems that report HIV positive test results
using names or other unique identifiers; however, HIV surveillance
systems must be standardized across the nation in order for their
usefulness to be fully realized. The United States will never
have a true picture of the HIV epidemic without accurate and uniform
HIV surveillance from every state and territory in the country.
Further, reliable data on HIV infection would
facilitate rapid response and long-term planning by local, state,
and federal bodies to inform HIV prevention and care efforts.
AIDS Action will work with its members, Congress, the administration,
and coalition partners to support the development of a uniform
HIV surveillance system that accurately reflects the U.S. epidemic.
[back to introduction]
|