The Weekly Update

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May 2, 2008

Vol. VII, Number 15

This Week in Washington

1. Congressional Briefing: Elevating STIs as a Public Health Priority

2. AIDSWatch Comes to Washington DC

3. Beinestar Holds “Latinos and HIV/AIDS” Briefing

4. Congresswoman Maxine Waters Calls for National AIDS Strategy

 

Announcements

1. AIDS Foundation of Chicago Launches online HIV/AIDS Education Program

 

This Week in Washington

1. Congressional Briefing: Elevating STIs as a Public Health Priority

On Thursday April 24th The National Partnership for Women and Families and the American Social Health Association held a Congressional Briefing entitled, “Elevating Sexually Transmitted Infections as a Public Health Priority.” Congresswoman Stephanie Tubbs Jones (D-OH) sponsored the briefing.

 

On March 11, 2008 the Centers for Disease Control and Prevention (CDC) released data from the National Health and Nutrition Examination Survey of 2004 which found that one in four young women age 14-19 is infected with at least one of the most common sexually transmitted infections (STIs). Several STI experts presented on this finding and the high prevalence of STIs among America’s youth. Presenters included Dr. John Douglas, Director of the Division of STD prevention at CDC; Dr. Peter Leone, Associate Professor at the University of North Carolina School of Medicine and Public Health, Dr. Virginia Caine, Director of the Marion County Health Department in Indiana and Professor at the Indiana University School of Medicine; and Dr. Karen Ashby, Professor at University Hospitals Case Medical Center in Cleveland, Ohio.

 

Representative Tubb-Jones began the briefing with opening remarks. In her opening comments she stated that the United States has the highest rate of sexually transmitted infections in the industrialized world, with half of all new infections occurring in young people ages 15-24. She said, “The issue of sexually transmitted infections has grown to epic proportions in this country. We can no longer be silent about this issue. The abstinence only education touted by the Bush Administration is simply not enough.”

 

On Thursday, April 24th Representative Tubb-Jones introduced H.R. 1131, a Resolution recognizing April as National STD Awareness month, with over 60 bi-partisan co-sponsors. The resolution encourages the federal government, states, and localities to provide additional funding for STI screening and treatment services and requests increased programming and activities to educate Americans of all ages on the risks and prevention of STD’s. Click here to view the resolution.

 

Next, Dr. John Douglas, Director of the Division of STD Prevention at the CDC, gave an overview of sexually transmitted infections in the United States. He explained that there are over 18.9 million annual cases of a sexually transmitted infection, costing the United States approximately $15.3 billion in direct medical costs per year.  When compared to other common sexually transmitted diseases, HIV had the lowest estimated incidence, but the highest estimated annual direct cost, $8.1 billion. Dr. Douglas then gave an overview of the first ever U.S. population-based study of the overall STI burden among female adolescents. The CDC study, “Prevalence of Sexually Transmitted Infections among Female Adolescents in the United States: Data from the National Health and Nutrition Examination Survey” found that one in four young women ages 14-19 had an STI. The study only looked at the four most common STIs: Chlamydia, Human Papillomavirus (HPV), Genital Herpes (HSV-2), and Trichomonas. This study did not take into account gonorrhea, syphilis, or HIV which are often co-morbid with other sexually transmitted infections. The study also found substantial racial disparity in STI prevalence. Nearly 47% of African-American females ages 14-19 is infected with one of the four common STIs.

 

The remaining speakers shared epidemiological data and clinical accounts of sexually transmitted diseases in teenagers from their local regions. All panelists agreed that high prevalence of STI among adolescents has reached epidemic proportions in their communities and must become an important federal public health priority, in need of increased attention and funding. The speakers emphasized the need for scaled up comprehensive sexual education and screening efforts.

 

AIDS Action advocates for increased funding for the CDC’s STD prevention program as part of the HIV/AIDS appropriations portfolio. AIDS Action is requesting that Congress fund the STD prevention program (part of the CDC’s HIV, Hepatitis, STD, and TB Prevention Department) at $167.3 million in Fiscal Year 2009. This would be an increase of $15 million from Fiscal Year 2008.

 

2. AIDSWatch Comes to Washington DC

The National Association of People With AIDS (NAPWA) held AIDSWatch 2008 from April 28 - 30, 2007.  AIDSWatch is the nation’s largest annual constituent based Federal HIV/AIDS advocacy event. During AIDSWatch people living with HIV/AIDS from across the country come to Washington, D.C. to participate in advocacy training sessions and then have meetings on Capitol Hill to share their stories and educate legislators on the most pertinent HIV/AIDS issues. While on the Hill, participants meet with Members of Congress and/or their staff to urge them to strengthen essential HIV-related health care programs—such as the Ryan White CARE Act, Housing Opportunities for Persons with AIDS, and Medicaid/Medicare—through increases in funding and improvements in policy.  The Treatment Access Expansion Project (TAEP) was a producing partner for this year’s event.

 

At the opening training session on Monday, April 28th, Frank Oldham, Jr., the Executive Director of NAPWA, welcomed participants. He explained that the key theme of this year’s AIDSWatch is “AIDS at Home”, a time to refocus on the domestic HIV/AIDS agenda.  Following Mr. Oldham’s remarks, Robert Greenwald, Director, Treatment Access Expansion Project echoed Mr. Oldham’s welcome and voiced the continuous need for grass roots and constituency advocacy work for HIV/AIDS.

 

Next, Rebecca Haag, Executive Director of AIDS Action and David Munar, Vice President of Policy AIDS Foundation Chicago, began the advocacy training with an overview of the need for a National AIDS Strategy. They encouraged AIDSWatch participants to urge their legislators to support the development of a National AIDS Strategy to end the HIV/AIDS epidemic in the United States and to sign the petition for a national AIDS strategy at www.nationalaidsstrategy.org.

 

This year, AIDS Action worked with AIDSWatch planners to establish the priorities for AIDSWatch 2008, separated into legislative and appropriations asks. Both Ronald Johnson, Deputy Executive Director of AIDS Action, and Bill McColl, Political Director of AIDS Action joined the training panel to educate participants of AIDSWatch’s legislative priorities. The legislative priorities of AIDSWatch 2008 are:

1.      Pass the Early Treatment for HIV Act (ETHA)

2.      Allowing ADAP expenditures to count towards true-out-of-pocket costs for Medicare recipients

3.      Impose moratoria to prevent the implementation of harmful Medicaid rule changes

4.      Pass the Microbicide Development Act

5.      Lift the federal ban on funding for syringe exchange programs

6.      Repeal the entry and immigration ban against HIV-positive foreign nationals

 

During the afternoon training Donna Crews, Director of Government Affairs, AIDS Action, joined the training panel to educate AIDSWatch participants on key Appropriations Requests. They appropriations priorities of AIDSWatch 2008 are:

1.      Increase funding for Ryan White Programs by $614.5 million

2.      Increase funding for domestic HIV prevention programs at the CDC by $608 million

3.      Increase funding for the Housing Opportunities for People with AIDS (HOPWA) program by $169.9 million

4.      Increase funding for the Minority AIDS Initiative by $223 million

5.      Increase funding for the Office of AIDS Research at the National Institutes of Health by $450 million

6.      Increase funding for the Substance Abuse and Mental Health Services Agency by $337 million

7.      Eliminate funding for abstinence-only education programs.

 

In addition to the advocacy overview participants were given the opportunity to learn how to articulate these requests and priorities during their meetings through hill visit demonstrations and “mock meetings.”

 

On Tuesday and Wednesday participants spent their days attending several meetings with Congressional offices that represent their respective districts and states. There was also an “AIDS at Home” rally on Tuesday April 29th attended by AIDSWatch participants, prominent HIV/AIDS activists, and several Members of Congress.

 

AIDSWatch 2008 sponsors included POZ, Harlem United, San Francisco AIDS Foundation, The Foundation for AIDS Research: amFAR, AIDS Action, AIDS Foundation of Chicago, American Psychological Association, Broadway Cares, Equity Fights AIDS, CAEAR Coalition, Gay Men’s Health Crisis, National Alliance of State and Territorial AIDS Directors (NASTAD), and the National Minority AIDS Council (NMAC).

 

3. Beinestar Holds “Latinos and HIV/AIDS” Briefing

On Tuesday, April 24, 2007, Bienestar hosted their third annual briefing on, “Latinos and HIV/AIDS.”  The speakers included Congresswoman Lucille Roybal-Allard (D-CA); staff from the office of Congresswoman Hilda Solis (D-CA); Congresswoman Barbara Lee (D-CA); Congresswoman Maxine Waters (D-CA); Oscar De La O, CEO and President of Bienestar; Evelyn Ullah, Steering Committee Member, of the National Latino/Hispanic AIDS Agenda; Dr. Kenneth Domiguez, Clinical Epidemiology Team, Centers for Disease Control and Prevention; and Dr. Timothy Harrison, Program Staff Specialist Office of HIV/AIDS Policy, Department of Health and Human Services.

 

Opening the briefing, Oscar De La O explained this history of Bienestar. Originally Bienestar was founded as an organization to serve Spanish speaking Latinos in Los Angeles with HIV/AIDS.  Now, 19 years after being founded, there are locations in LA County, San Bernardino County, and San Diego County.  .

 

Congresswoman Lucille Roybal Allard (D-CA) discussed her longstanding partnership with Bienestar and the HIV/AIDS work being done by the Congressional Hispanic Caucus’ Task Force on Health and the Environment.  She noted that President Bush’s proposed $1 million increase for Fiscal Year 2009 for the Ryan White CARE Act is dismal and the treatment of HIV positive immigration detainees, many of which are Latinos, by the Administration is not acceptable. 

 

Rep. Maxine Waters (D-CA) expressed her gratitude for the service Bienestar has provided her constituents in the Latino community and also her concern that after a quarter of a century battling the HIV/AIDS epidemic, the United States has not made sufficient progress. She conveyed her disappointment in Pres. Bush’s FY 09 budget request which would decrease the Minority AIDS Initiative by $15.6 million. Representative Waters sent a letter to Chairman Obey (D-WI) and Ranking Member Lewis (D-CA) with over 80 of her colleagues requesting $610 million to fully fund the MAI.  Rep. Waters concluded her remarks by telling all gathered that she supports a National AIDS Strategy (NAS) because it is time we involve all sectors of our society in the commitment to end this epidemic. 

 

Dr. Kenneth Dominguez gave an epidemiological overview of Latinos and HIV/AIDS in the United States.  According to the CDC, Hispanics represent 22% of newly diagnosed HIV infections. The CDC funds 59 community based organizations that serve Hispanics and Latinos and 33 community based organizations that target Hispanic and Latinos.  He referred the audience to the resources the CDC has on HIV in the Latino community which can be found at: http://www.cdc.gov/hiv/hispanics/index.htm

 

Then, Dr. Timothy Harrison gave a brief overview of the Minority AIDS Initiative (MAI).  He explained that the MAI was created in 1998 as a response to the growing concern about the impact of HIV/AIDS on racial minorities in the U.S.  In his overview he discussed the goals of the MAI along with the initial structure of the initiative.  He then explained that OHAP is working to gather data to show the true impact of the Initiative.

 

The remainder of the program included two panel discussions: HIV/AIDS Travel and Immigration Policy and U.S. Immigration Detention Centers and HIV/AIDS.  The panelists included Miguelina Leon, HIV advocate and independent consultant; Rep. Barbara Lee, (D-CA); Alexandra Nunez from Sen. John Kerry’s (D-MA) office; J. Stephen Morrison, CSIS Task Force on HIV/AIDS; Cesar Portillo, Bienestar; Laura Esquivel, Gay and Lesbian Victory Fund and Leadership Institute; Carol Chodroff, Human Rights Watch; and Tom Jawetz, Immigration Detention Staff Attorney. 

 

Rep. Lee opened the session by stating that the United States’ travel and immigration ban is unconscionable. She explained that the United States is only one of 13 countries that have a formal ban on HIV positive individuals entering the country. Representative Lee introduced H.R. 3337, the HIV Nondiscrimination in Travel and Immigration Act of 2007, to overturn the ban. Sen. Kerry introduced the bill’s companion legislation in the Senate, S 2486.  The Senate version of PEPFAR reauthorization legislation would overturn the ban. The full Senate has not yet voted on this bill. Ms. Nunez stressed the importance of people contacting their Senators and Representatives to educate them on this issue and to urge them to support language to overturn the ban in the final PEPFAR reauthorization bill.   

 

In closing, the remaining panelists shared stories about the realities of detention at the Immigration and Customs Enforcement (ICE) for people living with HIV/ AIDS.  The Center for Strategic and International Studies (CSIS) shared their publication, Moving Beyond the U.S. Government Policy of Inadmissibility of HIV-Infected Noncitizens, which can be found at: http://www.csis.org/component/option,com_csis_pubs/task,view/id,3759/type,1/ . 

 

4. Congresswoman Maxine Waters Calls for National AIDS Strategy

During AIDS Watch, Congresswoman Maxine Waters (D-CA), spoke at two HIV/AIDS events, and publicly expressed her support for the development of a national strategy to combat the HIV/AIDS epidemic.

 

During the AIDSWatch rally on Tuesday April 29th, Representative Waters said, “America can - and must - do more to fight this disease and to help those who are living with HIV/AIDS. I agree with those gathered here that we need a comprehensive national strategy to end this epidemic and to address the needs of everyone in America who is affected." Also on April 29th, she spoke at Bienestar’s Congressional Briefing on Latino’s and HIV/AIDS echoing her support of a national strategy and her commitment to make sure that the needs of minority communities are taken into consideration.

 

Click here to read Representative Water's Press Release.  

 

To learn more about the need for a national AIDS strategy, please visit. www.nationalaidsstrategy.org.

 

Announcements

1. AIDS Foundation of Chicago Launches online HIV/AIDS Education Program

On April 15, 2008 the AIDS Foundation of Chicago (AFC) and the Test Positive Aware Network (TPAN) jointly launched an interactive only program specifically designed to educate people living with HIV/AIDS. The program, PEERSpeak offers effective HIV/AIDS education through the voices of people living with HIV. The National Library of Medicine funded the multimedia educational program which is especially geared to people newly diagnosed with HIV.

 

Users are placed in the role of various HIV/AIDS service providers and follow the fictional “peer” characters through key moments in their treatment, including an initial doctor’s visit, a meeting with a case manager, and beginning their HIV treatment. The modules cover topics such as finding the right doctor, treatment options and tips, healthy living, the importance of social support, and mental health issues. The multi-format presentation also allows individuals with low literacy skills and cognitive disabilities to use the modules for self-education and service referrals.

 

PEERSpeak will be hosted at the AIDS Community Website.  The modules can be accessed at www.aidschicago.org/community.

 

The AIDS Action Weekly Update

The Weekly Update is written with the interests of our members in mind. If you are interested in membership with AIDS Action, we invite you to contact aford@aidsaction.org.

 

AIDS Action works to end the HIV epidemic by advancing public policies that prevent new infections, provide care for people living with HIV, and support the search for a cure. AIDS Action serves as the national voice for AIDS service organizations, health departments, and a diverse network of community-based organizations across the country, working with and for people living with and affected by HIV.

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