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December 3, 2003

Jr. Girl Scouts Ask Congressional Leaders to Support
People Living with HIV

Eleven-year-old Mariah Crews, a poised sixth grader from Upper Marlboro and president of Junior Girl Scout Troop 2635 recently read Ryan White: My Own Story, the autobiography of Ryan White, one of the country’s earliest and youngest HIV advocates. So did the other ten members of her troop, who had decided to read the book as part of a project on HIV.

On Thursday (December 4), AIDS Action will escort the troop on a visit to Capitol Hill where the girls will present Members of Congress with copies of Ryan White’s autobiography and share with the legislators the insights they have drawn from his moving story.

“Ryan White was a boy who had hemophilia and AIDS and he went through a lot at school because people took their kids out of school because they thought AIDS was spread through the air,” explains Mariah. Yet, rather than allow the illness—and the ignorance about HIV that was so pervasive in the early years of the epidemic—to get the better of him, Ryan White became an outspoken advocate for the rights of those living with HIV. He raised people’s awareness of the disease and improved their understanding of how HIV is—and is not—transmitted. At 19 years-old, Ryan White died from AIDS-related causes, but his name lives on in the most comprehensive piece of federal legislation that has ever been created for people living with HIV: the Ryan White CARE Act.

Enacted in 1990, the Ryan White CARE Act must be reauthorized every five years. Its next reauthorization will occur in 2005. This means that discussions about the future of the CARE Act are already taking place in Congressional and Executive-branch offices. So, the girls’ trip to Capitol Hill is well-timed.

“I want to tell the people in Congress that nobody should be treated differently just because they have a disease,” Mariah stated emphatically. “Everybody should be treated the same, no matter what.”

The troop is scheduled to arrive on Capitol Hill at 11:30 pm and will assemble outside the office of Maryland’s Senator Barbara Mikulski (709 Hart Senate Office Building). The girls will be available for photos Thursday afternoon at 1:00 p.m. in front of H-306 in the Capitol.

AIDS Action Foundation strives to end the HIV/AIDS epidemic by working for public policies that promote prevention against new infections, provide care for people already living with HIV/AIDS, and support the search for a cure. AIDS Action is the national voice of all people living with HIV, representing community based organizations across the country.


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