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July 27, 2005

AIDS Action Applauds the Administration’s Principles for Epidemic Management of HIV in the U.S: Test, Monitor and Treat

In response to Secretary of Health and Human Services Mike Leavitt’s statement and release of President Bush’s Principles on reauthorization of the Ryan White Comprehensive AIDS Resources Emergency Act (CARE Act)—the most important piece of domestic legislation dedicated solely to providing HIV treatment, care, and medical support services—AIDS Action released the following statement:

(Washington, DC) The board and staff members of AIDS Action Council applaud the Bush administration’s decision to make reauthorization of the Ryan White CARE Act a major component of his domestic agenda. True to the remarks he made during his State of the Union Address in January, and the release of his principles today, the President has demonstrated his understanding of how important it is to strengthen the nation’s most vital HIV legislation. Furthermore, the White House, along with the Department of Health and Human Services, has demonstrated their understanding of HIV disease management and of the urgent need to make critically important improvements to the CARE Act so that it can respond effectively to the country’s growing and changing HIV epidemic.

The Administration has set as a priority the provision of “life-extending” care and medications to those most in need living with HIV in the United States. In order to improve management of the domestic epidemic and ensure that communities and individuals with the greatest needs are served by CARE Act resources, the White House recommends making routine voluntary HIV testing available in public health facilities, shifting national surveillance from the reporting of “AIDS diagnosis” to “HIV infections” and making certain that basic primary medical care and medications are available.

“It is clear that the Bush Administration recognizes the important role the Ryan White CARE Act plays in our nation’s response to the HIV epidemic,” states Craig Thompson, board chair for AIDS Action Council and executive director of AIDS Project Los Angeles, “and that this reauthorization is an opportunity we can’t afford to waste and we call for a serious commitment to funding, technical assistance and community consultation necessary to implement these Principles.”

AIDS Action Council salutes the goals of the Principles released today to address the single greatest crisis in the U.S. epidemic: 500,000 people with HIV who lack adequate access to medical care and life-saving medication. These men, women and children will be reached and served through the changes proposed.

“The federal government estimates that there are half a million people in the United States who are living with HIV and do not have access to regular medical care, which means they are without treatment,” observes Dr. Linda Frank, public policy co-chair for AIDS Action Council and for the National Association of AIDS Education and Training Centers. “This situation is unacceptable. As long as patients are unable to access the medications and qualified health care providers that keep them healthy and productive, the domestic epidemic will continue unabated,” she adds.

“We must quickly move America’s response into the 21st century—and this modernization should begin with the strengthening of the AIDS Drug Assistance Program (ADAP) consistent with the President’s priorities for federal funding,” Dr. Frank concludes. ADAP is authorized in the CARE Act legislation to provide medications for the treatment of HIV disease and it also funds the purchase of health insurance for eligible participants. AIDS Action Council asks the President and Congress to bring an end to the crisis in HIV drug access during the upcoming reauthorization of the Ryan White CARE Act by ensuring the following:

  • Every state and territory is encouraged to offer what is known as an open formulary of medications, which provides access to all FDA-approved drugs. Open formularies grant physicians the full ability to prescribe the most appropriate medications, thus ensuring optimal health for their patients.
  • A single national standard for ADAP income eligibility is set at three-and-a-half times the Federal Poverty Level. Setting ADAP eligibility at this level would increase the number of people served. Individuals earning higher wages would then stay healthy enough to continue to work. Remaining in the workforce will increase participants’ earning power, fueling movement out of the program. In addition, this national standard would make it possible for ADAP participants to move across state lines in order to be closer to family members or to take advantage of job opportunities without causing disruptions in their treatment.
  • States and territories are able to purchase drugs at the same discount rates provided to the Veteran’s Administration, Department of Defense, Public Health Service, and Coast Guard under the federal ceiling price, thus enabling states to purchase drugs at lower prices.
  • The ADAP budget is increased to $1.5 billion in fiscal year (FY) 2006 with annual increases of $100 million each year thereafter to $2.0 billion in FY 2011.

(These measures are outlined fully in AIDS Action’s proposal, Streamlining and Modernizing the AIDS Drug Assistance Program (ADAP) of the Ryan White CARE Act, at www.aidsaction.org.)

“By acting on these recommendations which, if enacted, will help to streamline and modernize the CARE Act and the AIDS Drug Assistance Program, President Bush and the Congress will be helping America to chart a new course in the domestic epidemic,” affirms Marsha A. Martin, executive director of AIDS Action, who attended the Secretary’s briefing on the Principles today.

AIDS Action strives to end the HIV epidemic by advancing public policies that prevent new infections, provide care for people living with HIV, and support the search for a cure. AIDS Action serves as the national voice for people living with HIV and represents AIDS service organizations, health departments, and a diverse network of community-based organizations across the country.


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