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On Thursday (December 4), AIDS Action escorted Junior Girl
Scout Troop 2635 from Upper Marlboro, Maryland on a visit
to Capitol Hill where the girls presented 80 Members of
Congress with copies of Ryan White’s autobiography, Ryan
White: My Own Story and shared with the legislators
the insights they had drawn from his moving story. The eleven
members of the troop had decided to read the book as part
of a project on HIV.
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| Renee
Antoine and Gabrielle Barnett in the office of Rep.
Ralph Hall after delivering Ryan White autobiography. |
Along
with the books, the girls distributed a letter they had
drafted which explained their interest in increasing people’s
awareness of HIV. “We have been learning about Ryan White
and [how] he was discriminated against,” they wrote. The
letter continued, “If people learn about [HIV], hopefully
they won’t be scared of people with this disease and other
diseases.” The letter ended with the girls requesting that
Members read the book so they can help “pass peace, love
and justice to people who are living with HIV and AIDS throughout
the country.”
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| Teneil
Sivells, age 11, asks a question of Mary Hanks, Legislative
Aide to Senator Barbara Mikulski as the rest of Junior
Troop 2635 listens. |
The
whole troop expressed excitement about visiting the Members
of Congress and sharing their thoughts and impressions of
Ryan White. One girl, Marie Hallman, a ten year-old fifth
grader, thought their choice to read the book and visit
Capitol Hill was quite appropriate, since December 6 marks
the anniversary of Ryan White’s birthday and Monday, December
1 marked World AIDS Day. Summing up her own reasons for
participating in the Hill visits, Mariah Crews, the troop’s
president, said, “I wanted to tell the people in Congress
that nobody should be treated differently just because they
have a disease. Everybody should be treated the same, no
matter what.” This sentiment was echoed in the closing of
the girls’ letter as well. It stated that all people should
be treated with the same respect that Members of Congress
receive.
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| Marie Holloman, age 10; Jasmin Spears,
age 10; and Mariah Crews, age 11, present Ryan White’s
autobiography to Austin Bryan, Aide to Sen. Lamar Alexander. |
Enacted
in 1990, the Ryan White CARE Act must be reauthorized every
five years. Its next reauthorization will occur in 2005.
This means that discussions about the future of the CARE
Act are already taking place in Congressional and Executive-branch
offices. So, the girls’ trip to Capitol Hill was well-timed.
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| Junior
Troop 2635 of Upper Marlboro, MD, at the end of their
day on Capitol Hill, delivering the Ryan White autobiography
to 80 offices, with Troop Leader, Donna Crews and parents,
Tamara Dorsey and Sharon McCorkle. |
“Ryan
White was a boy who had hemophilia and AIDS and he went
through a lot at school because people took their kids out
of school because they thought AIDS was spread through the
air,” Mariah explained. Yet, rather than allow the illness—and
the ignorance about HIV that was so pervasive in the early
years of the epidemic—get the better of him, Ryan White
became an outspoken advocate for the rights of those living
with HIV. He raised people’s awareness of the disease and
improved their understanding of how HIV is—and is not—transmitted.
At 19 years-old, Ryan White died from AIDS-related causes,
but his name lives on in the most comprehensive piece of
federal legislation that has ever been created for people
living with HIV: the Ryan White CARE Act. This important
piece of legislation will be reauthorized in 2005. The 80
Members of Congress whose offices were visited by the girls
all serve on one of the two Congressional committees that
will lead the reauthorization process: the Senate Health,
Education, Labor and Pensions Committee and the House Energy
and Commerce Committee.
During
the day’s activities, the girls carried forth the spirit
of Ryan White, informing health care staffers that Ryan
White “helped other students understand that you can’t catch
HIV through casual contact.” They received warm welcomes
in many of the Congressional offices, including that of
Senator Barbara Mikulski (D-MD). While meeting with the
girls, one of her staff members revealed that all fourteen
of the women who are currently serving as Senators had been
girl scouts in their youth. She also revealed that Senator
Mikulski viewed her time in the girl scouts as one of the
most meaningful experiences she has ever had. Though they
were pleased to share this connection with the Senator,
the girls’ expectations were not diminished: they insisted
that Senator Mikulski read the autobiography and said they
would follow up with her to verify that the Senator had
done her “homework.”
Eleven
year-old Mariah Crews, president of Troop 2635, explained
the lesson the girls hoped to teach the Members of Congress
through this assignment: “Nobody should be treated differently
just because they have a disease. Everybody should be treated
the same, no matter what.”
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| Triana
McCorkle, age 10, presents Ryan White: My Own Story
to Mary Hanks, Legislative Aide to Senator Barbara Mikulski |
see
the girls' letter to the Members of Congress
see Senator Tom Daschle's
(D-SD) letter to the girls
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